Tuesday, August 23, 2011


We learned a week ago that Jackson will NOT be a candidate for the ear canal surgery.
Dr. Roberson said that his facial nerve runs right where he would need to complete the surgery.  If he did perform the surgery, he would run the risk of facial paralysis.
For all of my other bloggy-friends that have children with microtia/atresia, once I hear back from Dr. Roberson, I will let you know what Jackson actually scored on each ear.  I believe that anything less than a 6 Dr. R will not attempt the surgery.
So, you might be asking where we will go from here!
We will have the Medpor reconstruction for his outer ears by Dr. Reinisch.
We have no idea when we will start that process.
On the same day that we received this news, we also found out that Jackson's speech is not as far along as it should be.  Apparently our audiologist at Shands recognized this back in Feb. when Jackson was 3 months into wearing his Baha, but never said anything to us.  She wanted to give him more time.
She is recommending that Jackson have a Velopharyngeal evaluation completed.
She is concerned that the flap is not closing in the back of his throat or that his palate may be too short and that is why he cannot produce the first consonant sounds at onset...m, b, etc.
We are also in the process of trying to get Jackson his 2nd Baha so that he can wear then bilaterally.
We know that God has amazing plans for our little boy!


  1. Hugs. I am sorry! Silas had one ear just like this. Jackson is amazing and has come so far! God does have wonderful plans for him.

  2. Sorry to hear you got disappointing news. :-(

    On another note, I found your blog via Ni Hao Y'all and a comment you made about living in Daytona Beach. We are very close to you (one county north) and also have 3 kids, 5 1/2 (from China), 4, & 2 (both bio). We would love to connect if you are interested.


  3. Forgot to give you a way to contact me besides a blog comment. If you go to adoptionvoyages.com (that is our website) and use the "Email Us" link near the bottom of the home page, you can email me, and I will send you my personal email address.